14/02/22
Hello and welcome to part 48 and what started as a hard day ended with bit better news, Helen called last night at 11-30 was bit confused and worried I phoned the ward back and they got a nurse to go in and she managed to settle her down, she phoned again this morning and although she was still bit confused she wanted me to open my Valentine card as she was wanting me to take photos of it and I read it out, it was really lovely, so I opened hers and read it out to her and then told her I would be up to see her soon. I went to the ferry and got a cup of tea and then three spiky mikiys or star biscuits which Helen really likes and then headed up to the hospital. Helen was ok most of my visit she did get a wee bit confused especially when she was getting tired. A consultant was meant to come back to see her but the wait was to much Helen kept saying come on come on and I think she was wanting her back before she got to tired so I ended up going and asking can they please find out if they are coming to see Helen and sure enough a palliative care came to see her and gave Helen a couple of choices and we are going with the second, Helen is going to go to Roxburgh house where she can recuperate if all is ok they said it is not end of life care it is a place where they can get her used to going back home and help with what she would need and also she can get a pass to go home and a nurse would go with her or she can just get a pass and we can go for tea or a coffee, they also will offer her physio and some therapy to help her relax which Helen needs so much she needs to be able to rest and I mean all of her she has been through so much and I just don't think she has had a really couple of good nights rest, we now hope that her head scan comes back and nothing has moved in her brain and I have everything crossed.
15/02/22
Well today has been a much better day for Helen, when I went in they told me that she had not long had a bubble bath and that she was now away for a scan of her head, when she came back she was or looked so much better that she has in a long time what an amazing women the torment she must have gone through her brain just working 24hrs nearly every day and then today she just was more like Helen I think she even managed to get a better sleep, the consultant came to see her and said he was happy with first look at scan and he will know a bit more when he gets a better look at it, he is also happy for Helen to get this help at Roxburgh in the hope she can come home when she feels more like her self, he asked her some questions to see how her memory was and she managed to answer and after all she has been through well it was so good and I hope this continues so she can just get this break she needs, normally by the time I leave she can be a bit confused but today she played a game of solitaire on her kindle and that is a massive step as she wasn't really able to do much like that in the last ten days or so I am really hoping she can get a good rest tonight and it continues helping her to well just relax and give her head a rest and in all honesty I can imagine how worried Helen will be about coming back home, just imagine if you can a place where you have stayed for 35years a home and you are worried or scared about going back to that place and then I think you will know what she has had to endure. My thoughts are with her constantly and I hope tomorrow she is even better but I will take anything no matter what as long as she is comfortable and settled. On way home I felt bit better so decided to dry the back roads and it was a full moon so I pulled over and took a couple of photos.
Well today started early as Helen phoned the back of five in the morning was a bit confused and i think the fact is she never had a good nights sleep as when i phoned at nine they said she was settled and having breakfast, when i arrived she was still bit confused but i could tell she was tired as her eyes looked really heavy and she seemed a bit of kilter, a lot of consultants and the likes came to see her and i felt it was to many but have to say the news as things go was good, her scan cane back and they were happy with everything but they are still trying to find out why at times Hellen is a bit confused, she went to the toilet while i was there and all i can say is her pee was really smelly and cloudy so i told the nurse and they are going to check this again. While there they decided to scan her bladder to make sure all was ok and it was but after they scanned it Helen fell asleep for about fifteen minutes and when she woke she was much better and seemed more on the ball. We are still waiting on a bed for Helen at Roxburgh house to help her relax and get the help she needs in the hop that one day she gets home and all i can say i hope this happens soon as as much as the staff in ward 32 are fantastic really they have given helen all the help they can but she needs a place with no beeps or buzzers or phones going off someplace where she can have a really good or few good night sleeps and their is a slight chance this may happen tomorrow, fingers crossed. As for me well not much to say was in the town this morning to get Helens glasses sorted then the hospital spending nice time with Helen.
17/02/22
Well what as been a long day especially for Helen she has finally been transferred to Roxbroughe house, when I went to see her today she was so down I could not get her to concentrate on much at all and even when her sister came Helen just wanted to go to sleep as she was fed up and angry at the fact that she just did not know what was going on but finally one of the nurses from ward 32 came in to see her to tell her that they finally had space for her at R H and although Helen became a bit scared it was the best thing that happened all day, but please let me say that the staff in ward 32 Ninewells looked after my wife like she was one of their own. As soon as Helen got to RH she fell asleep and even when consultants came she woke for a while but all she wanted to do was sleep and she did, I stayed until 9pm so when she did wake up she never woke to no one being beside her and all I can say that when she did eventually wake she was more like her self and ate some toast and had a cup of tea, she was put on a drip as well as she was a bit dehydrated and they managed to get a urine sample which was still very smelly and they seem to think that she may still have an infection. When I left she was settled and I am hoping she can get as much sleep as possible and it does her good. So that was my day and truth be told the fact that I was able to sit with Helen and have tea and toast with her well yeah that was a good day especially after the way it started. As you know my mission was to keep Helen on this planet as long as I can, Helen mentioned that she won't be here for my Birthday this morning when she was having a hard time, I told her well no one has said that all they have said was they will try to get you home or enough confidence to get you home but truth be told I don't care if Helen is still in RH or home for (of course home would be best) as long as she is with me then well that's the best birthday present I can ever have.
18/02/22
Well as i sit here with Helen she really has had a more settled day but lots of people coming in and asking questions and although tired Helen really managed well and it is good to see her more calm and at the moment she is having a rest, i have told her that i will stay as long as she wants and also i have to admit although we are not in the house it has been good to sit and just watch tv together and have a chat. The snow has been on and off today but has not laid and the wind that was forecast well i have not heard or seen any of it yet, this morning it was heavy rain so never really did that much before coming to see Helen.
Well another day spent with Helen simple pleasures like being able to watch tv and have a bite to eat with her are to me great moments and she seems calm and a lot more settled when i left and i hope as always she gets a good night sleep and feels better tomorrow. As for me i shall be heading home soon and having a hot blackcurrant in hope i can keep this cold at bay.
19/02/22
A real hard day, had a phone call from Roxburgh late last night saying Helen was agitated and can i come up, so i dashed up and she was wee bit more settled so they made me a bed up and i stayed the night. She did sleep most of the night as did i but today has been a really hard day for her and it is only now that she seems a bit more settled, she has been refusing things all day so they had to give her the steroids with a jab and doctor gave her something to settle her down and she i am hoping it works. I of course have been upset most of the day Helen sister Joyce came up so i managed to get home for a while and get a change of clothes and a quick shower and something to eat my brother came up and picked me up and sat with me a while which was good as i have not seen him in a while.
20/02/22
Spending days with Helen in Roxburgh as strange as it sounds has been really nice, she has had a very settled day and asked me if we can just speak about things non medical and so we did, we spoke again of holidays, nights out and lot of other things and just took our mind of all that has been going on and so many happy memories. I am going to spend as much time here as I can to see if it can help Helen so when she wakes in the morning I’m there and once again I am hoping tomorrow is the same. The blog now of course mainly about Helen and of course as she is my main concern. I am not doing much else I manage wee walks beside here and do bit exercise and tomorrow if all being well when Helens sister arrives I will take a couple of hours out and head home to check the house. Until next week thank you for continuing to read my blog. Ged
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